7/23/2014 Music brings you "Alive Inside" I have written much on this site about the power of music to unlock the memories of those with dementia, about my own experiences using live music with Alzheimer's patients and how music can improve the quality of life for the elderly (and their caregivers!). Refer to the iPod Project and Music and Memory posts on this site. Now, the long-awaited release of the documentary film about this exciting subject is happening across the country. I hope you have the opportunity to see the film in theaters, but if not, it will be available in October on DVD. If you are a caregiver for someone who might benefit from the inclusion of personalized music, please visit the website www.musicandmemory.org for information about setting up an iPod or other MP3 player with music for your care recipient. You could make an incredible difference in their life and your own with this simple action. Take a look at the video trailer below and consider how good it would feel to bring one you love "alive inside" again with music! Dr. Bill Thomas, creator of the Eden Alternative and ChangingAging.org website, blogs about his part in the Alive Inside documentary. You'll find his article in the DailyBeast Op-Ed: Treat Dementia With Music, Not Drugs is excellent. Here is the trailer for the Alive Inside documentary (winner of the Audience Award at 2014 Sundance Festival): or visit the website for times and dates of showings at www.aliveinside.us I have written often of the benefits of meditation, particularly when combined with music as a guided meditation experience. Now there is increasing evidence from mainstream medical research of what has been understood for thousands of years by wise teachers of many traditions: meditation is great for people! The truly excellent thing about meditation is that anyone can do it, pretty much anywhere. It is easy, free (or very inexpensive if you choose to buy CDs or download guided versions), is proven as effective as pharmaceutical aids in reducing depression and stress, and has no side effects other than an increased sense of well-being and peacefulness. Click here to see the research done at Johns Hopkins investigating meditation as anti-depressant. What's not to love about that? The Mayo Clinic also published a newsletter article titled "Meditation: A simple, fast way to reduce stress" which gives an great overview of the subject . Various forms of meditation have been taught, mostly in eastern cultures, and the practice has been growing by leaps and bounds in the west over the past thirty years or so. There have been a number of pioneeers in bringing the practice of mindfulness-based stress reduction (MSBR) to the west, including Jon Kabat-Zinn who founded the Stress Reduction Clinic and Center for Mindfulness in Medicine, Health Care, and Society at the University of Massachusetts Medical School. His clinic was featured on the public television series Healing and the Mind with Bill Moyers in 1993. Meditation has such incredible benefits that I believe everyone can find some help by practicing it. In my own experience as a caregiver, meditation and music, combined with fervent and frequent prayer, saved my sanity when it was hanging by a thread. I find it compelling that the list of benefits meditation offers so exactly corresponds to symptoms many (or most) caregivers experience. The only mystery to me is why more caregivers don't use this incredible tool for balance and strength. Which is why I am making it my mission to get this information out to those who need it through this website & blog, by writing, speaking, teaching, and otherwise promoting it. How often is there a perfect solution to so many of our everyday stresses just waiting for us to sit down and get quiet long enough to find its gifts? If you'd like to explore the ideas and resources for meditation, please visit my Meditation and Music page on this site and also take a look at the ideas for Self-care and Caregiver Resource Store. I will also be publishing a book which further details resources and tools for caregivers: Sanity Savers for Caregivers at the End of Their Rope. You can add your name for an announcement of publication, which is targeted for March 2014. If you would like to read a chapter from the book about the uses of music and meditation, click here. I encourage you to explore the idea of various forms of meditation and find what appeals to you personally. In my 17 years of caregiving, music and meditation were the brightest jewels in the caregiver crown. Try it out. You have nothing to lose and so very much to gain! For those in the Naples area, there's a special opportunity tonight to view the acclaimed documentary I Remember Better When I Paint, with special guest & co-director Berna Huebner. Hosted by the Naples Art Association, the film, narrated by Olivia de Havilland, is the first international documentary about the positive impact of art and other creative therapies on people with Alzheimer's and how these approaches can change the way we look at the disease.
The event will be held tonight, February 17, 2014 at the Naples Women's Club, 570 Park Street in downtown Naples, beginning with a reception at 6 pm, the film screening at 6:30 pm and followed by a panel discussion with several experts in the field. This is free to the public. For more information, please visit the Naples Art Association website. 2/15/2014 Love is Our True DestinyLove is our true destiny. We do not find the meaning of life by ourselves alone - we find it with another. ~Thomas Merton I want to share with you a couple funny stories about my Mom in the nursing home. They are proof that love never dies and is our true destiny, as Thomas Merton attests. I arrived for a visit with Mom to find her sitting in the TV common area holding hands with the gentleman in the seat next to her. As I walked in and gave her a big hug and kiss, I asked how she was. She smiled a very sweet, slightly sly smile and glanced at the man beside her saying, "I'm doing fine. I've got a man!" I cracked up, since she was 91 at the time and because it reminded me so much of the Gershwin lyrics from the song I Got Rhythm: I've got my man, who could ask for anything more? She then expressed concern about whether I had a man of my own (I assured her quickly that I did, lest she suggest something I didn't want to contemplate). Mom and this very kind man continued to be good friends and companions until death parted them, and it always warmed my heart to see them holding hands and smiling at each other fondly. The second story happened earlier, soon after Mom arrived at the home and before she met her gentleman friend. I was at work, in a frantically busy office, when my cell phone vibrated, indicating a call from the nursing home. In a bit of a panic, fearing some kind of emergency, I grabbed the phone and rushed out to the parking lot to get a good signal, leaving a lobby full of people waiting, none too pleased about my disappearing act. The social worker from the nursing home quickly allayed my fears and then told me she had an "incident" to report. Well, that sounded pretty ominous. An incident? She further relayed that while waiting for the dining room to open, my mother had been sitting in a small alcove watching TV when another resident, a man, kissed her. I think I laughed out loud at this point feeling very relieved and repeated, incredulously, "Kissed her? Do you mean a peck on the cheek kind of kiss or were tongues involved?", I questioned. She assured me that it was fairly innocuous, according to her interview of the two people involved and witnesses. She further reported my Mom did not seem distressed at all by the kissing "incident" and indeed could not recall it. Well, I've had kisses that were less than memorable, but I suspected it was Mom's Alzheimer's causing this lack of recall. As I breathed a sigh of relief, I explained to the harried woman that I was not upset by this breach of manners, and actually, if this were the worst "incident" that ever happened that would be excellent. In fact, I continued, "My Mom may have even been the kiss-er instead of the kiss-ee, in this case, given her propensity for flirting." Sometimes you just have to look at the lighter side of life and love. With all the Valentine's Day hoopla yesterday so fresh in mind, it feels good to know that love can bring us joy at any age and in any circumstance. So get out there and hold hands with someone you love. And make your own kissing incident. Love is our destiny, indeed! 12/11/2013 Hope and Help for Caregivers
The RCI is a service unit of Georgia Southwestern State University in Americus, Georgia, and combines advocacy, education, research and service in supporting caregivers by promoting caregiver health, skills, and resilience. The focus is on helping caregivers cope with chronic illnesses and disability across the lifespan. This includes such a wide range (everything from autism to cancer, Alzheimer's to traumatic brain injury) that to get a full representation, I suggest you take a look at their caregiver resources page: www.rosalynncarter.org/ which features over 100 links to information and assistance sites. The programs of outreach include the Georgia Care-Net Coalition, which represents 12 regions around the state and serves as a voice for caregivers, the REACH program for Alzheimer's caregivers providing training and support in partnership with other organizations in 17 states, and Operation Family Caregiver, which provides free, confidential support, counseling and training for military family caregivers in-home, or via telephone or Skype. If you or someone you know could benefit from this program, call for information at (229) 931-2034.
The Summit featured keynote speaker Elizabeth Dole, who spoke eloquently on behalf of the million (yes, million!) military caregivers who are valiantly trying to cope with the approximately 725,000 veterans who are returning from the battlefield with both visible and invisible injuries and disabilities, including post-traumatic stress disorder (PTSD) and traumatic brain injury (TBI). The urgent need is overwhelming the services the Veteran's Administration is able to provide, leaving so many families in dire straights. Elizabeth Dole has created a foundation to assist these many military family caregivers in coping with the crisis: Elizabeth Dole Foundation website With Elizabeth Dole's inspiring and passionate words still reverberating in our hearts, there was a brilliant presentation by Gregory Fricchione, MD, Associate Chief of Psychiatry and Director Benson Henry Institute for Mind Body Medicine at Massachusetts General Hospital and Professor of Psychiatry at Harvard Medical School. Dr. Fricchione's presentation was simply amazing in its depth, scope and brilliance as he related very technical evidence of how the very evolution of the human brain over 120 million years influences those suffering PTSD and TBI. He communicated this complex information in such an accessible way and with humor and compassion that I found it truly engaging. I couldn't miss the comparisons of battlefield stress disorders with some of the same symptoms exhibited in the chronically stressed caregiver. Dr. Fricchione put it in context that was understandable and also hopeful. His funniest points were about the greater adaptability of slime mold (as compared to the human brain) and also, his opinion that the canine species was infinitely superior in unconditional love. (I think I agree with him about dogs! He even showed a video clip of his dog meditating - definitely a higher species!) I was vastly reassured that such brilliant researchers are bringing light to the issues we are facing. If you'd like more about this, his slide show may be found through a link on RCI's homepage for more Summit info. Without his charming quick wit and personality, it just isn't the same! I was so impressed with the excellence of the programs and the caring compassionate hearts of the people involved. I met people from all over the world who are each working in their own way to support caregivers. There was such an atmosphere of hope, collaboration and cooperation and the convergence of politics, education, public support, private corporate sponsorship, recognition of excellence, community outreach and caring hearts -- I have never seen the like before. How could one not be inspired and uplifted? |
About Karen
Karen is a compassionate, enthusiastic student of life, who cared for her mother for 17 years. She brings her insights, compassion, experience and desire to share knowledge and healing to this ongoing conversation with others on the caregiving path. If you are caring for a parent, spouse, friend or other loved one this site offers sanity-saving tips, open-hearted self-care ideas, and an open forum for discussion, connection and sharing resources for the journey. Archives
October 2021
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